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Navigating Cystic Fibrosis as a Couple: Finding Laughter and Joy in the Midst of the Journey

Hey there, fellow CF spouses and partners! Welcome to our little corner of the internet, where we try and find humor in the chaos of life with a loved one battling Cystic Fibrosis. If you're feeling overwhelmed, you've come to the right place. Let's dive into the hilarious highs and ridiculous lows of being a CF spouse or partner – because sometimes, laughter truly is the best medicine.


First things first, let's talk about the quirks and idiosyncrasies of living with someone with CF. From the endless array of pills and treatments cluttering up the bathroom counter to the not-so-sexy sound of a nebulizer humming in the background during movie night, life with a CFer is never boring, that's for sure. But hey, at least we've got plenty of excuses for why the house always smells like a pharmacy, right?


Then there's the joy (and terror) of hospital stays. Ah, the sweet smell of disinfectant, the uncomfortable hospital beds, the never-ending beeping of machines – it's like a five-star vacation, minus the room service and poolside cocktails. But hey, how cute are those stylish hospital gowns and what about all that fancy new medical jargon we’re learning?  That’s right!  Look out Grey’s Anatomy, here we come!


And let's not forget about the fun of navigating the healthcare system – because who doesn't love spending hours on hold with insurance companies, arguing over coverage and copays? It's like a twisted game of bureaucratic bingo, and we're all just trying to come out on top (or at least with a shred of our sanity intact).


But amidst the chaos and the craziness, there's a bond that holds us together – a love that's stronger than any disease, any setback, any obstacle. We may face challenges that other couples can't even imagine, but we also share moments of joy and laughter that are uniquely ours. And isn't that what life is all about?


So, here's to us, the CF spouses and partners who laugh in the face of adversity, who find strength in each other's arms, and who refuse to let cystic fibrosis define our lives. Together, we'll navigate this crazy rollercoaster with humor, grace, probably some tears.... but also, with a whole lot of love.


Until next time, keep laughing and loving!

1 Comment

Been married to my CFer for 41 years. Been through hell and back but would do it all over again! Now living a miraculous post transplant life!💚

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