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About Us
Since our launch in 2016, our team has been dedicated to providing resources and support to spouses and partners of individuals with cystic fibrosis. We understand the unique challenges faced by these individuals, and our mission is to empower and support them.
Our hard work has allowed us to create a support network and help bridge the gap between CF spouses and partners and the rest of the CF Community. We strive to create an accepting and understanding space for CF spouses and partners to connect and grow with each other, by creating a community that is supported and informed, while also continuing to advocate for our loved ones.
Through our projects we have been able to provide online support groups, peer-to-peer mentoring, and educational resources and we are committed to continuing to grow to meet the ever-changing needs of our community.
Our Work
📌 2009 – Roots of Community
Founded the first peer-support group for CF spouses, creating a space where partners could connect and share lived experiences.
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📌 2016 – Nonprofit Established
Project CF Spouse officially incorporated as a nonprofit, laying the foundation for structured, sustainable support.
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📌 2016–2017 – National Recognition
Awarded the inaugural CFF Impact Grant. Featured in Cystic Fibrosis Foundation press releases and blogs highlighting the importance of spouse/partner support.
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📌 2018 – Building Connection
Invited to present at the North American Cystic Fibrosis Conference (NACFC). Launched monthly Spouse Calls, creating a consistent safe space for partners.
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📌 2019 – Rapid Growth
Community expanded significantly, marking a turning point in engagement and reach.
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📌 2020 – Expanding Voices
Launched the Our Salty Life Podcast, extending education, connection, and advocacy.
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📌 2019–2023 – Continued Support
Recipient of multiple CFF Community Support Grants, affirming the ongoing need for spouse- and partner-focused programming.
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📌 2023–2025 – Community-Led Insight
Launched surveys and outreach projects to identify resource gaps and guide future development.
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📌 Today – Looking Ahead
Focused on advancing digital resources, research, and advocacy to strengthen support for spouses and partners worldwide.