Understanding CF Basics

• Cystic Fibrosis Foundation (CFF): Learn About CF
  Clear, accessible information about what CF is, how it affects the body, and what treatments are available.

• CFRI Educational Webinars: CFRI Webinars
  Free sessions on CF research, treatments, and life topics.

 Fertility, Family Building, and IVF

• CF and Fertility Resource (CFF): Fertility and CF
  Understand male infertility in CF, family planning options, and assisted reproduction paths.

• Boomer Esiason Foundation Scholarship and IVF Support Programs: BEF Programs
  Financial help and resources for CF families navigating infertility and IVF.

 Lung Transplant Support

• Lung Transplant Foundation: Pre- and Post-Transplant Resources
  Guides, support groups, and transplant mentorships.

• CFF Lung Transplant Info: CF and Lung Transplant
  How transplant fits into the CF journey, explained clearly.

Navigating Healthcare and Advocacy

• CF Compass (CFF): Personalized Help
  Free, confidential help with insurance, legal, financial, and care coordination questions.

• HIPAA and CF Care: Know Your Rights
  Learn how spouses/partners can stay involved in healthcare decisions under HIPAA rules.

• CF Peer Connect: 1-on-1 Support
  Match with a trained peer mentor to talk through challenges and share advice.

Copay Assistance and Financial Help for CF Meds

• CFF Compass Financial Assistance Guide: Financial Resources
  Help finding grants, copay support, and insurance aid.

• HealthWell Foundation CF Fund: HealthWell Assistance
  Helps cover medication copays and insurance premiums for those with CF.

• PAN Foundation CF Fund: PAN Assistance
  Provides financial support for medication costs for eligible patients.

• Good Days: Good Days Copay Support
  Financial help for out-of-pocket costs related to CF treatment.

 

Have a resource you love? Let us know!

We’re always looking to expand and update this list with the help of our community.

(Email link or form link here, if you want submissions.)